I am not your hero

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A couple weeks ago, a mother of a child with spina bifida wrote a courageous column titled “My Child With a Disability is Not My Hero,” which has been tumbling around — along with the usual gazillion other thoughts — in my brain.

Now, I’d like to say a few things.

First, I agree in many ways with Sarah Sweatt Orsborn’s perspective as a parent, and I applaud her for being brave enough to write about it so honestly. It’s an important question for parents of children with disabilities to think about. Orsborn writes, “The tendency of parents of kids with special needs and disabilities to say their kids are ‘heroes’ makes me deeply uncomfortable.” She explains that she feels this way because to call children with disabilities “heroes” amounts to demarginalizing and dehumanizing them. They’re just kids, and should be allowed to be kids first and foremost, not put up on a pedestal or given standards that may be tough to live up to.

Now, as someone who grew up and lives with a disability, I’d like to chip in my piece: a “Adult With a Disability” perspective. The idea of calling someone with disabilities a hero just because of what they have and who they are also makes me uncomfortable. Here’s why.

I was born deaf. I grew up deaf. I’m still deaf and will be deaf for the rest of my life.

But I am not a hero. My simply being born deaf or being deaf is no reason to call me a hero. It is just part of who I am. I was born that way. Are you a hero because you were born with blond hair? Are you a hero because you were born with brown eyes? Are you a hero because you were born with a talent for math or a talent for kicking a soccer ball?

I didn’t think so.

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Text-to-911 service available for deaf and hard of hearing in Denver

AT&T/Relay Colorado, the Colorado Commission for the Deaf and Hard of Hearing, and my business, Context inMedia, recently partnered to produce a commercial promoting a  text-to-911 service now available for deaf and hard of hearing people in Denver.

Before current technology, if an emergency happened, deaf and hard of hearing people faced serious challenges in contacting emergency services. Now, with various relay services – especially video relay – it’s much easier to call 911 using your videophone, computer, laptop, or mobile phone. However, internet or video relay often isn’t ideal in fast-paced emergency situations when you’re not at the address to which your VP/account is registered. And many deaf and hard of hearing people do not sign fluently and so cannot use video relay to call 911, and internet relay is notoriously slow.

This is where text-to-911 can help. No more chasing after hearing people, asking them to call for you. No more standing by at the scene of an accident, wishing you could do something but feeling you can’t, because you have no way to contact 911. Now, deaf people can step up and do it themselves!

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