A couple weeks ago, a mother of a child with spina bifida wrote a courageous column titled “My Child With a Disability is Not My Hero,” which has been tumbling around — along with the usual gazillion other thoughts — in my brain.
Now, I’d like to say a few things.
First, I agree in many ways with Sarah Sweatt Orsborn’s perspective as a parent, and I applaud her for being brave enough to write about it so honestly. It’s an important question for parents of children with disabilities to think about. Orsborn writes, “The tendency of parents of kids with special needs and disabilities to say their kids are ‘heroes’ makes me deeply uncomfortable.” She explains that she feels this way because to call children with disabilities “heroes” amounts to demarginalizing and dehumanizing them. They’re just kids, and should be allowed to be kids first and foremost, not put up on a pedestal or given standards that may be tough to live up to.
Now, as someone who grew up and lives with a disability, I’d like to chip in my piece: a “Adult With a Disability” perspective. The idea of calling someone with disabilities a hero just because of what they have and who they are also makes me uncomfortable. Here’s why.
I was born deaf. I grew up deaf. I’m still deaf and will be deaf for the rest of my life.
But I am not a hero. My simply being born deaf or being deaf is no reason to call me a hero. It is just part of who I am. I was born that way. Are you a hero because you were born with blond hair? Are you a hero because you were born with brown eyes? Are you a hero because you were born with a talent for math or a talent for kicking a soccer ball?
I didn’t think so.